ALBANY, N.Y. — A new state agency established to protect an estimated 1 million New Yorkers with disabilities has logged more than 5,000 calls to its abuse hotline in the first three weeks.
[image: 10 photos featuring me at a press conference, with various TV cameras and reporters, with the governor of Utah, and testifying at a legislative town hall]
SO. MUCH. MEDIA.
People with disabilities have more than a difficult history when it comes to matters of the heart, when it comes to love and relationships. It might not be seemly to write of the violence perpetrated on the bodies of people with disabilities … the castrations, the forced sterilisations on a day celebrated with lace and chocolate. But you can’t understand the one without recognizing the other.
Years ago, after hearing the story of a man with a disability, beaten because he was caught making love with his boyfriend, forcibly separated from the man that he loved, and who endured years of taunting and bullying by those paid to care for him, I decided to do something. Along with the direct support staff who worked most closely with him. We worked at finding the other man, his long lost love, and we brought them back together. Too much had happened, too much pain, they met, they embraced, they cried for a very long time in each other’s arms and then the said ‘goodbye.’ Neither could conceive of a relationship, with anyone, ever. But they wanted the goodbye. He said to me, after it was over, “Love is wrong, people hurt you for it.”
Years ago, after hearing the story of a man who was punished, sent to his room without dinner, for being caught with his girlfriend, in a downstairs room. He came out of that room to find that she was gone from his life. He never saw her again. I offered to help him try and find her. He just shook his head and said no. He said it was too late. He said he was too afraid. He said that he was worried that she hated him for getting her in trouble. “She lost her home because of me. She lost her friends.” I offered a few times but then stopped offering when he asked me to stop offering.
These stories are not uncommon. These stories are still happening. While it is better, while people with disabilities are beginning to have the right to relationship, the right for sexual expression, the right to use the heart for other than the pumping of blood, it is better for a tiny minority of people.
There are still those who stand guard over the lives, the bodies and the hearts of people with intellectual disabilities. There are those who write policies that police rather than free. There are still staff who believe that their opinions should become people with disabilities facts.
SHOUT OUT TO ALL MY DISABLED FATTIES WHO HAVE PEOPLE ASSUMING YOU’RE JUST A LAZY PIECE OF SHIT WHEN YOU TAKE THE ELEVATOR OR A SEAT ON THE BUS WHO NOT ONLY HAVE TO PUT UP WITH THE CHRONIC PAIN THAT COMES WITH A LOT OF ILLNESSES BUT PEOPLE MAKING A MOCKERY OF YOU WHEN YOU GO OUT AND TRY AND DO YOUR THING.
I LOVE YALL
My MH wheelchair!
Mine has a bag on the back, along with holding straps.
My wheels don’t move, I have them held into place with stoppers, but the tutorial shows you how to make one with moving wheels.
By our admin Jade!
I’m tired of being forced to be a sinking ship when I know I’m the entire goddamn ocean.
types of anxiety disorders // what is panic disorder? // panic disorder & agoraphobia // tips to cope with a panic attack // 3 ways to help someone having a panic attack // 4 things you shouldn’t say to someone having a panic attack // what is obsessive compulsive disorder? // more on ocd // coping with ocd // living with someone who has ocd // what is post-traumatic stress disorder? // coping with ptsd // 10 tips for understanding someone with ptsd //what is social anxiety disorder? // coping with social anxiety disorder // how worrying affects the bodyCALMING DOWN
wikihow // helpful tips // 3 practices to calm an anxious mind // how-to guide // creating your mind palace // 3 breathing exercises // 6 breathing exercises // yoga bunny // meditation for beginners // about meditation // yoga with connie bowman // 20 minute yoga routine // yoga to make you happy // guided meditationMASTERPOSTS
back to school // helpful websites // happy things // feel good things // college survival // a lil bit of everything // a really big masterpost // music masterpost // diy home spa // coping skills & distractions // for bad days // bad day remediesBLOGS
yogaholics // killyouranxiety // thatanxietyblog // lets-beat-mental-illness // recoverykitty // yogis-yoginis // healthylifestylechoice // happier-soon // rising.co.vu // catfromhell // you-can-just-breathe (trigger warning: autoplay) // recovery-in-pink // forescent // recoverytreeMUSIC
note to self. // good feelings // coffee shop acoustic // bubble baths, coffee and hardback books // rad covers // a little bit of everything // good morning // breathe // acoustic // conquer school // wheels on the road // choose happy // coffee shop tunes // my faves // good vibes // late winter nights // lovely quiet // overwhelmed // tonight you’re perfect // random [feel]goodies // rewind // crawling back to you // sleepy tunesRELAXING NOISESOTHER
make a grounding box // top 10 essential oils to relieve anxiety // personal care products from walgreens // aromatherapy // 19 natural remedies for anxiety // 7 best anti-anxiety foods // lots and lots of sweaters // stuffed animals // books (free) // used books for 1 cent // electric blankets // soft pillows
Friendly reminder that the well intentioned phrase “step up, step back” is ableist. Alternative: move up, move back.
ummm, as a person in a wheelchair (at least most of the time these days), thanks, but no thanks. we don’t need to be babied. we can handle expressions.
Seriously… ableism manifests in so many REAL ways that go ignored, it’s a little irritating for people to focus so much on silly word choices.
Max Ortiz Catalan has developed a new method for the treatment of phantom limb pain (PLP) after an amputation. The method is based on a unique combination of several technologies, and has been initially tested on a patient who has suffered from severe phantom limb pain for 48 years. A case study shows a drastic reduction of pain.
People who lose an arm or a leg often experience phantom sensations, as if the missing limb were still there. Seventy per cent of amputees experience pain in the amputated limb despite that it no longer exists. Phantom limb pain can be a serious chronic and deteriorating condition that reduces the quality of the person´s life considerably. The exact cause of phantom limb pain and other phantom sensations is yet unknown.
Phantom limb pain is currently treated with several different methods. Examples include mirror therapy, different types of medication, acupuncture and hypnosis. In many cases, however, nothing helps. This was the case for the patient that Chalmers researcher Max Ortiz Catalan selected for a case study of the new treatment method he has envisaged as a potential solution.
The patient lost his arm 48 years ago, and had since that time suffered from phantom pain varying from moderate to unbearable. He was never entirely free of pain.
The patient´s pain was drastically reduced after a period of treatment with the new method. He now has periods where he is entirely free of pain, and he is no longer awakened by intense periods of pain at night like he was previously.
The new method uses muscle signals from the patient´s arm stump to drive a system known as augmented reality. The electrical signals in the muscles are sensed by electrodes on the skin. The signals are then translated into arm movements by complex algorithms. The patient can see himself on a screen with a superimposed virtual arm, which is controlled using his own neural command in real time.
”There are several features of this system which combined might be the cause of pain relief” says Max Ortiz Catalan. “The motor areas in the brain needed for movement of the amputated arm are reactivated, and the patient obtains visual feedback that tricks the brain into believing there is an arm executing such motor commands. He experiences himself as a whole, with the amputated arm back in place.”
Modern therapies that use conventional mirrors or virtual reality are based on visual feedback via the opposite arm or leg. For this reason, people who have lost both arms or both legs cannot be helped using these methods.
”Our method differs from previous treatment because the control signals are retrieved from the arm stump, and thus the affected arm is in charge” says Max Ortiz Catalan. ”The promotion of motor execution and the vivid sensation of completion provided by augmented reality may be the reason for the patient improvement, while mirror therapy and medicaments did not help previously.”
A clinical study will now be conducted of the new treatment, which has been developed in a collaboration between Chalmers University of Technology, Sahlgrenska University Hospital, the University of Gothenburg and Integrum. Three Swedish hospitals and other European clinics will cooperate during the study which will target patients with conditions resembling the one in the case study – that is, people who suffer from phantom pain and who have not responded to other currently available treatments.
The research group has also developed a system that can be used at home. Patients will be able to apply this therapy on their own, once it has been approved. An extension of the treatment is that it can be used by other patient groups that need to rehabilitate their mobility, such as stroke victims or some patients with spinal cord injuries.
do you ever wash your face with cold water and feel like your life has changed dramatically
There’s scientific reasoning behind this!
One of the biggest skills my therapist pushed for coping with self-harm is called “ice diving”, which is immersing your face in a bowl of ice water for a few seconds. She told me that it had a measurable effect on the autonomic nervous system, therefore triggering an emotional reset of sorts, which is immediately calming.
So yeah, cold water is great for mental health! ;)
Most disabled people need doors opened for them (literal doors, you ableist assholes) so don’t hesitate to offer or lend a hand. We appreciate it.
That being said, you people have no depth presentation.
Public doors usually swing open to somewhere near a right angle and the door…
Progress is progress no matter how small. Sometimes progress is your efforts not your results.